COFFI Consumer Dialogues - Supporting Children with Fatigue
This recorded panel discussion was created to support parents of children living with fatigue and related conditions. It helps parents understand what may be happening, what supports recovery, and how they can best help their child.
The discussion brings together people with lived experience of recovery and professionals working successfully with children and adolescents. The focus is practical, hopeful, and grounded in both experience and research.
Who This Is For
Parents and carers of children with fatigue, ME/CFS, Long Covid, or persistent post-viral symptoms
Families looking for reassurance, understanding, and evidence-informed perspectives
Those wanting to hear from both clinicians and people who have recovered
What This Panel Covers
How fatigue and related conditions can develop in children
Why symptoms are real and distressing, even when tests are normal
What research and clinical experience suggest helps children recover
The role of stress, emotional load, and early illness experience
How parents can support recovery without pushing or causing harm
About COFFI
COFFI (Collaborative on Fatigue and associated persistent symptoms following Infection) is a global research collaborative dedicated to improving understanding, treatment, and recovery from fatigue and persistent somatic symptoms after infection.
The COFFI Consumer Advisory Group helps guide research priorities and promotes a constructive public narrative that supports collaboration between patients, families, clinicians, and researchers.
